March 21, 2016

  • Addressing the Issue of Bullying RE: Kevin Healey

    before-think-speak-large

    Many years ago I was interviewed by a man in the UK named Kevin Healey regarding Autisable's efforts within the Autism community.

    Prior to the interview I had to do some research on who Kevin was and what he was a part of .... after all, I need to know who I'm going to be speaking with and what they are about.

    I noticed in my initial research that Kevin did a lot for the Autism community in the UK, with a Radio program, and other organizations he's served on over the years.

    I also took note that Kevin is also on the Autism Spectrum.

    Now think about this a moment....

    I am considered by many to be neurotypical... or, as some may say... normal.   In short, I'm not Autistic.   Kevin, however, is Autistic.

    So, here I am, an Autism Dad going to be interviewed by someone who is on the Spectrum that resides and does a lot of work in the United Kingdom for the Autism community.

    Now I've been interviewed by people here in the USA, in Jamaica, and for other blogs and websites.   But this interview was the first done by someone who is actually Autistic.

    This is a significant point when dealing with the topic of bullying and what Kevin has since had to deal with online since even before I've met him.

    So, let's address the topic of bullying and my experience with Kevin over the years.

    First, bullying is caused by many factors.   Some of these factors are as simple as miscommunication or misunderstanding.   People may think someone acts differently or is annoying, and they joke or ridicule them because of their difference.

    I personally experienced some bullying online with various threats of legal action by someone living in Canada.  They asked that Autisable cease our efforts or legal action would be taken.   They shared this openly online and in various e-mails and direct messages.    As it turned out, this same individual was doing the same level of attacks upon Kevin.   Suffice it to say, I experience an attack alongside Kevin in our efforts to promote Autism awareness and understanding.

    Most of the time, bullying online happens because people are bored - or they get fixated - or the people bullying think they are having fun.  But the damaging result of bullying can lead to such detrimental results such as people losing their jobs or committing suicide.    It's a serious matter and not to be taken lightly.

    Autisable is known online as an unbiased website where we share anything Autism related.   Our twitter account retweets and shares just about anything you can think of regarding the topic of Autism.    The good, the bad... and yes, even the ugly name calling bullying side.    We want to promote any discussion so we can put the issues out there for people to discuss.

    We tend to let conversations run their course, and monitor and respond if necessary.  I have talked with my team over the years about what we post on the site, and how although we try to be unbiased, we also have to be sensitive to people's journey dealing with an already controversial topic called Autism.

    This takes us to our current situation.   Someone responded to our twitter account accusing Kevin of bullying, and the team asked them to DM us the information.   After all, we've known Kevin over the years and don't take any accusations on this matter lightly.

    We said that we will review the information and respond.   I won't share who all is involved in the accusation.  Nor will I share the various screen shots and links of what was sent to us.  Just know that there are people who have accused Mr. Healey of bullying.

    Many of the screen shots sent to us were of Kevin, or his anti-bullying campaign twitter accounts, trying to get information from various people to discuss bullying.

    I will say that Kevin is a very focused and passionate individual.   And sometimes having a passion for a topic can be rather off putting.   After all, if you have a passion for something so great, you want to pursue that passion with some intensity - right?   Well, in that regard Kevin is no different than the rest of us.    But also his diagnosis of having autism is a contributing factor of how he may act or respond.   It's part of who he is, and understanding his diagnosis more would help anyone to understand him more.

    In regards to the information sent to us, and after discussing it with the team here on Autisable... here's our determination of these accusations towards Mr. Healey being a bully...

    We disagree that he his a bully.   We've determined the issue is not bullying, but rather miscommunication between all parties - and lack of effort to understand and respond to Mr. Healey appropriately.   Mr. Healey's only fault was his repetitive efforts at obtaining a response.

    His actions, although passionate, are a part of who he is as an individual.   The various responses by those he was trying to communicate with showed their lack of understanding of Autism and of Mr. Healey.   Having Autism doesn't give Mr. Healey a pass at certain actions he may have taken, but it does help explain why he may have responded the way he did.

    What we've found is that the items sent to us were of screen shots and links where a significant amount of miscommunication happened between the accusers and Mr. Healey.   Out of this miscommunication and lack of effort - the situation escalated to where accusations were introduced.

    Now communication is best when all parties involved actually take serious effort to understand each others perspectives.

    Did Mr. Healey respond in the best possible way to the people he was trying to communicate with?   Possibly not.    But are any of us perfect in how we respond to everything we deal with on a daily basis?    Again, possibly not.   We could also state that did what the accusers of Kevin being a bully act in the best possible way?   Possibly not.

    As with most situations involving bullying, much can be resolved through discussion offline, or in more than 140 characters.   And in most situations it's a matter of having an understanding of the individual and what they deal with on a daily basis and seeing it first hand.

    We have seen people call Kevin Healey all sorts of names online.   From retard, to idiot, and the list goes on.   After reviewing the social media accounts of those who accused Mr. Healey of being a bully, we've found similar words being used on their accounts.   This is one of the reasons that we don't want to call attention to them and share what they shared the with our team.

    Out of respect to all involved, we also want to make sure we don't provide direct negative attention to anyone who inspired this particular blog post.

    This post is to address the issue of Bullying, and sharing an example of what one individual in the community deals with on a regular basis to address the issue of bullying.

    Sad to say, this situation is more about lack of communication between the parties involved - rather than bullying on Kevin's part.   Therefore these are accusations that do not hold up in our eyes, based on our observations and review... and our experience with Kevin Healey over the past 5+ years.

    We can only encourage you to T.H.I.N.K. before posting anything online.  You can start by asking the following questions:

    Is it TRUE?

    Get down to the core of the issues that state the truth.  Keep communication lines open and talk things out with individuals you have issues with.   Build bridges to get over potential assumptions and accusations.    In the current situation we've found a lot of discrepancies due to lack of communication.   Now whether that lack of communication was intentional or unintentional by one or all parties involved doesn't matter, as the fact remains that the truth couldn't have been discussed appropriately and thus the subsequent accusations came forth.

    Is it HELPFUL?

    Does the situation help another individual in some way?    How can accusing someone of something help the person you accuse?  Talk it out, encourage them.
    In this situation, and due to lack of communication between the parties - the only level of help that could come from it was a post like this one.

    Is it INSPIRING?

    Is what your posting prompting people to think about others more than themselves in a positive way?
    How could Kevin being accused of bullying, or his responses to those he was trying to communicate with - be an inspirational moment?   For us, it inspired this response.   Sometimes bullying is our lack of trying to see more than ourselves.   It inspired us to show a bit more empathy and compassion for all those involved.

    Is it NECESSARY?

    Some things may be true, could be helpful or inspiring.... but is it really necessary to share it?  sometimes it's best to let things take their own course and let a situation go.
    Other times it's necessary to shine the light on a situation to see how it could have been handled better.  We present this blog post as a response to share the situation as we see it, and hopefully better actions can be taken in the future.

    Is it KIND?

    Kindness is something we need more of.   It's an attitude to have when dealing with anything in life.    It's not a weakness.  In fact, it takes more strength to be kind than to be unkind.

    In this example we saw how all parties involved could have handled it better, and it usually starts with at least one person stepping up to be kind.   And if it's not the other person being kind, than it's time to look in the mirror.

    We know that this response may come under some potential negative comments, considering the subjects and the topic in question.

    All we can do is encourage everyone to Think before they post.... and please remember to be kind.

    - The Autisable Team.

     

     

March 13, 2016

  • Perceptions About Autism

    Autism Moms
    I came across this Autism Meme this weekend, and it really hits the nail on the head.

    Although I'm an Autism Dad, the journey is one many Parents share.

    Many of my coworkers and friends think that I'm constantly dealing with meltdowns and behavior issues.  After all, it's not uncommon for me to vent a little frustration and to show up with a few bruises on my arms.

    My Parents always thought I was doing social media and playing around online, and whenever I'm out in public and so many sensory issues are flaring up and my sons in full blown meltdown - people think to rather call CPS or a Police Officer rather then ask if they can help... as I drag my son to a quieter place to allow him to calm down.

    On top of this, the major challenges from Radio and TV journalists and Government representatives thinking that all of us Autism Parents are hyper focused on vaccines and causation.  Which for most of us is far from the reality of what we really want:  Understanding of Autism and all that surrounds raising a child on the spectrum, and the tools and services being affordable to help our kids be the best we can be.   Causation is and will continue to be researched, but we can't and won't dwell on it...  as that doesn't help families deal with the everyday issues that is facing them in the moment.

    We have to be like soldiers, constantly in battle with friends, relatives, co-workers, insurance companies, doctors, caregivers, school systems.... always on the ready each and every day.   24 hours a day, 7 days a week, for the rest of our and our childrens lives.

    But, in the end, we're just parents, loving our kids.... trying our best.   Embracing those moments when our child smiles back at us, laughing with us, and showing us who they really are.

    This is what Autisable is about!    Sharing the communities stories, promoting understanding.

    And hopefully, one day, people will 'get it'.

    This was a bit of an encouragement to me, and I thank this blogger for it.

    If you get a chance, visit the website where I got this meme - http://balancingthebucket.blogspot.com/

     

    - Joel Manzer, Lead Editor

February 29, 2016

February 1, 2016

December 14, 2015

  • When can we blog again?

    When 3D Question Word Red Letters Asking
    This past week we've been receiving messages via facebook and e-mails... and for those that know us... a few phone calls.

    All these folks are asking a common question: "When can we blog again on Autisable?"

    These folks have stories to share, things to get off of their mind.   But more importantly, they have a message to discuss about Autism.

    It's been awhile since we've done a proper update as to where we are with the site, and so here are some updates...

    Autisable is currently owned by Xanga.com, Inc.  out of New York City.   This is being mentioned on a regular basis over the past couple of years because of how significant the changes are going to be in the near future.

    Right now, our website is currently located on the Xanga servers.    We are in the process of spinning off from Xanga completely.   This means that our website will be on new servers.

    We've already secured a new 'physical' home for Autisable, and are working on what is now the BETA site.

    The goal is to get the BETA site up and running, and then 'flip the switch' to the new site/location when we have most of the functionality on the BETA site ready.

    One of the major points of functionality on Autisable was the ability for people to have their own account so they can blog.

    Although we highlight hundreds bloggers and non-profits worldwide, we do have a small core group of bloggers right here on Autisable!

    The challenge with the old platform that we were using was our inability to really highlight people who blogged exclusively on Autisable.   Everyone we highlighted was thrown together on our main page.   And because our main page was a basic blog template from the folks at Xanga - many folks thought Autisable was just another Autism blog - or an aggregator site (which to some extent we were... but we are so much more then that).   With the BETA site, we want to showcase non-profits, bloggers, and more.....

    Another challenge with the old platform were spam account creation.   With the new platform and us having the ability to better monitor accounts, this negative exploit of spam accounts is brought under control.   With the new platform, we have some serious site security upgrades in this area as a by product.

    Now - to answer the question of when can we blog again....

    A few key facets to Autisable's functionality have to be addressed in order to make this happen:
    1 - the appropriate settings on Autisable have to be made to allow for multi-site use.   Since Autisable is going to be powered by WordPress, there is the ability to set the site up to allow for muli-site.    This would allow for such things as 'username.autisable.com' to be put back into place.
    2 - addressing how multi-sites would be managed appropriately
    3 - how multi-site accounts will be able to connect with each other.  We want people to be able to blog on the site, and quickly find others who blog - read/comment/ and subscribe to each others blogs.... just like it used to be on the old platform.

    The good news is that we know WHAT needs to be done and HOW we are going to go about it.   Over the next few weeks we will be diving into the implementation of this functionality and making sure things are set up correctly.

    Our goal is to have things ready for the switch sometime in January.

    Thank you for your encouragement and support as we push to make this happen.

    Blessings,
    The Autisable Team

November 14, 2015

  • BETA site in the works - a Sneek Peak

    Screen Shot 2015-11-14 at 2.10.43 PM

     
    We've been working hard on some major upgrades to Autisable.

    Above is what we have so far in terms of our sites new look and feel.   Now this may not be what you finally see, but it gives you an idea as to the direction we are going with our website.  There may be some minor changes as we dive into the finer points of developing the site.

    One of the things you may notice is our old tag line has been removed.

    We've removed the tagline for several reasons:

    1. It is old and outdated - We've had this same tagline since the site was launched in 2009.   It was time for a change.
    2. Some found it offensive and we want to be sensitive to unify the Autism community, and not have something that could be viewed as divisive.
    3. The puzzle logo we have is part of our branding, as the puzzle piece concept is highly associated with Autism on a global scale.  We won't remove our logo- but we don't want to call individuals with Autism (or those who consider themselves Autistic) a puzzle.
    4. Our puzzle logo is all aspects of the community coming together - pointing to Autism - providing a platform where we are able to discuss and encourage one another - hence the name of Autisable is a combination of the words Autism and Able.   Simply providing a place online where we are Able to Discuss all aspects of Autism.

    Beyond our main page is the aspect of being able to easily connect with other social media sites we are on -  with people also having the option to log into Autisable via Facebook, Twitter and Google+.

    The social component of the site, where folks can have their own account and connect with each other is also in the process of being developed.

    With the above picture being the top half of the main page, here is the bottom half (as seen on a PC):

    Screen Shot 2015-11-14 at 2.11.45 PM

     
    The site is responsive, meaning it is easily viewed on PC/Mac and Mobile/Tablet devices without any major issues.   In short, the site is more 'responsive' and user friendly on more devices.

    All this said, we are really most excited about connected the Autism community!

    We want to highlight even more bloggers and non-profits, and share more of what each of you are doing within the community.

    Of course we'll feature some content like we've always done, but we want to present more content on our main page in a way that will highlight more people's blog posts.

    We're already connected to hundreds of bloggers and non-profits, and we've only highlighted a few posts a day in the past.   This led to us having a serious backlog of blog posts and articles, sometimes leaving us with several months worth of content that we weren't able to present in a more timely fashion. Sometimes we'd highlight a blog post several months to a year after it was published.    This led for some of our bloggers wondering why we highlighted such an old post.   This new design will allow us to share more on our main page, along with having content that is more relevant to what is going on within the same month.   In short, the new design allows us to serve the community better.

    Also, having a main page that shows we aren't "just a blog" - will help new folks more easily understand more of what we are doing, and that there are hundreds of people sharing their journey on the site.

    There's a lot more that we're working on for the site to help promote our bloggers and non-profits websites and social media accounts.  We are making a lot of progress in this area, and will share more in future updates.

    Now our mission hasn't changed - bringing the Autism community together.

    We all have a different experience with Autism.  It's these different perspectives and opinions that can help us understand our community, and as a result, will help us understand our friends and loved ones even more.    Over the years this concept has not only helped our family, but many others, overcome some of the stigma and fear that many may have regarding the word 'Autism', and allowed families to come together to help each other in a more meaningful way.

    Since Autisable is a for profit company with a philanthropic vision - we aim to work with advertisers who have a heart for the Autism community.   This will allow Autisable to remain free to use.  This also means that we will continue to set aside 10% of what we earn and donate it to a non-profit that benefits Autism families and individuals directly.   As we grow, we will increase our ability to give back to the community.

    We love hearing from you!

    Feel free to ask questions, make comments and suggestions.

    Thank you for your continued encouragement and support as we move through all these transitions/changes.

    -Sincerely,

    The Autisable Team

October 20, 2015

September 23, 2015

September 6, 2015

August 26, 2015

  • Advertise With Us

    AdvertiseWithUs
    Many have asked over the years if we are a non-profit.  No, we do not have that honor.

    We are, however, a for profit company with a philanthropic vision.   Our goal is to help individuals and organizations unite and share their message and journey with Autism.

    To make sure we are able to reach our vision, we operate by working with advertisers and sponsors to help provide the revenue to keep our website running and to produce future episodes of Autisable Live.

    With our previous website that was based on Xanga.com's proprietary platform, we were very limited on what ads would be displayed.   Many times our site displayed ads from companies that many of our over 50,000 readers didn't really support or care for, and some strongly disagreed with.   The reason for this was because those ads were primarily managed through google adsense.   In short, we had little to no control over who or what company promoted their products on our website.  We were also very limited on working and coordinating with advertisers on promotional campaigns via our website in blog posts or even social media updates.

    But with our upgrade, this has changed.

    Our primary goal when working with advertisers is to make sure that the company has a heart to help the Autism community.   If their intention is to serve the community as best they can, than we are willing to work with them.   If an advertiser is just wanting to promote through our channels to get sales and not really have a heart for the community, we will respectfully decline on working with them.

    We will encourage anyone to support our advertisers and sponsors, because we try our best to work with our advertisers to provide feedback on how they can help the autism community.  From blog posts sharing who our advertisers are, to online campaigns that include social media updates.

    With all this being said, if you own a business and are interested in advertising with us - please leave a comment.   Doing so will allow us to reach out to you with more information.

    We are regularly improving our website,  and will have a monthly newsletter, and we recently launched our web series.  We also are working with other companies and bloggers and organizations as a means to help promote Autism awareness, acceptance and understanding.

    Thank you for considering us.

    Sincerely,

    The Autisable Team